My parents were upset that I had been diagnosed with Epilepsy. I was given Epilim (Sodium Valproate) to control my seizures. Mum and Dad were relieved that I had been put on Epilim because at the time many of the alternatives had sedative side effects and they thought that I was already enough of a zombie as I was.
My parents tried very hard not to let the Epilepsy rule my life. My best friend at school was an inspiration, she had a physical disability (caused by a motor accident). She never let this hold her back, she had the most happy personality I have ever known and was probably the most popular person in the class. My Epilepsy was nothing in comparison.
That does not mean I had an easy time accepting my Epilepsy. I did not like the way that it affected my freedom or the way it made me feel different. I certainly hated the seizures! It is just that my friend made me keep a sense of perspective on things (and on a bad day, helped me to try and get a sense of perspective back on my situation).
My parents tried very hard not to be over protective, this was hard when they had to make decisions regarding whether I would be safe to ride my bike on the road or not. If in doubt they asked my neurologist, in the case of the cycling, he said that I was less likely to have a seizure if my brain was active and it is good for me to have the exercise. My parents agreed but I had to let them know where I was going and also avoid busy roads.
Not everything about Epilepsy is bad news. The black and white television was a trigger for my seizures, so we got a new colour one. Showers are safer than baths so we had a shower fitted. I was not allowed to lock the bathroom door and if I did have a bath, my parents would get me to sing out loud because if they could hear me then they would know that I was alright.
My story so far...
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