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Tigger's QA

1 Have you got Epilepsy?
I have Epilepsy.
2 When were you first diagnosed?
I was first correctly diagnosed in 1972.
3 What type of Epilepsy do you have?
I have simple partial epilepsy leading to tonic clonic seizures I also have photosensitive epilepsy where the triggers are red flashing lights and flickering fluorescent lighting.
4a What medication do you currently take?
I currently take Tegretol Retard 400mg twice a day, Keppra is 1500mg in the morning 500mg afternoon and 1000mg at night and a trial drug Retigabine 400 mg three times a day.
4b What other medication have you taken in the past to control your Epilepsy?
Previous medication includes, Ospolot, Epanutin, Phnobarbitone and Epilim just to name a few.
5 Any other info you want to share?
I have had Epilepsy now for 35 years (properly diagnosed for 30 years). I have tried just about every anti epileptic drug there is so I have been on the trial drug Retigabine for the past 2 years. I have developed a phobia about going out during that time though it was beginning to manifest itself before then.

Epilepsy Support has been a godsend to me and to others I know as it has allowed others in the same situation to get together and be that helping hand that everyone needs now and then. I have made some very good friends here and would not like to be without them at all now. Now I can laugh and use the strength that I have built up into trying to overcome my fears and build a better quality of life for myself and my family.

6 Tigger has also contributed an article in the Information pages.