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Janey's QA

1 Have you got Epilepsy?
I have Epilepsy
2 When were you first diagnosed?
I was first diagnosed when I was 10 years old
3 What type of Epilepsy do you have?
I have Primary Generalized Epilepsy: Tonic-Clonic (grand mal) seizures, Absences (I sometimes, kinda stare into space) and my eyes 'flutter' (especially when I am stressed / over tired / nervous / excited etc).

I also have Simple Partial seizures where I see Auras of a flashing kaleidoscope of colours in the right hand side of my field of vision (which look pretty but is a warning that a biggie is on its way).

I have Photosensitive Epilepsy, I am sensitive to flashing lights and narrow stripes.

4a What medication do you currently take?

I currently take Lamictal 175 mg and 200mg at night - this will be increasing to 200mg twice a day (in a few weeks time),
& Folic Acid 5mg

4b What other medication have you taken in the past to control your Epilepsy?
I used to be on Epilim (Sodium Valproate) 1500mg:
1x500mg tablet in the morning and 2 at night.
5 Any other info you want to share?
I also have PCOS (Polycystic Ovary Syndrome) and am on fertility treatment... fingers crossed there! - Update Baby due January 2005).

I set up this community to help people with E and their carers help themselves and each other. I am not a trained medical expert but I believe that people with E can help each other by sharing their experiences and opinions of what it is like to live with Epilepsy.

6 Link to your websites:


Family website